Thursday, September 30, 2010
I feel like Will is one of those people who just can’t seem to catch a break. Not only does he have the daily challenges of a small child living with cerebral palsy and a cortical visual impairment, but he had to have a g-tube put in and his adenoids removed in the same year. But it doesn’t stop there…
Little Will has to have yet another surgery in October for something totally unrelated to any of the other ailments mentioned above! You may recall a while ago when I mentioned Will’s trip to the urologist to talk about an undescended testicle. At the time, they felt as though the testicle was “retractable,” which meant that it went up and down at will. We were scheduled to follow up in 12 months.
Well now that little boy’s little boy is stuck in the up position. So they have to go in and retrieve it. How fun.
Hopefully after this surgery, Will can catch a break! He needs one.
Friday, September 24, 2010
Thursday, September 23, 2010
So I finally caught him on camera! Will appears to get himself off of the ottoman and onto the floor because he wants to... and because he knows that he can! He can do it consistently and he is VERY proud of himself when he does it. He wiggles himself to the edge of the ottoman, kicks his legs until his lower half starts moving towards the floor with the aid of gravity, and then slowly turns and lowers himself until he laying is on the floor. With a huge smile on his face.
Wednesday, September 22, 2010
Monday, September 20, 2010
Those words are the modified refrain to a country song. I don't know what the song is called. I don't know who sings it. All I know is that when we tried to feed Matt rice cereal tonight, that is the song that popped into my head.
Needless to say, the boy is not a fan. Despite our valiant efforts, he pushed everything right back out of his mouth. The plan is to give him a week to recover and try again. Perhaps with something a bit more tasty. By the looks of things, Matt is relieved by the mention of this new plan.
He also says thanks to Nana Jean for the cute bib! Maybe Matt will be willing to make it a bit more messy next time.
Thursday, September 16, 2010
We took them with us on a hike at Eno River State Park. Of course, I was happy to have more people with us at the park to evenly distribute bridge-crossing responsibilities! And Otis did much better at not being a wimp when going across!
This weekend was also Uncle Chris' birthday, and Luke and Will's half birthday. When I was growing up, we always celebrated half birthdays... I think mostly because all of my family had birthdays in March and April. By the time September and October rolled around, we needed something to celebrate! So we got some little cakes and sang Happy (Half) Birthday. Will and Luke are now officially 3 and a half (eek!) and Uncle Chris is... not.
We spent a lot of time hanging out at home, cooking, laughing and playing with all the boys. Good times! Who remembered that Slinkies were so fun?! Can't wait to do it again!
Tuesday, September 14, 2010
Sunday, September 12, 2010
Ms. Jen has indicated to us that she can tell Will holding more of his own body weight when he sits up, when compared to his posture when she first started working with him. Way to go Will! I didn't really get to see that, though. Of course on the night that I was there, Will's muscle tone bounced between that of uncooked and al dente spaghetti... there was nothing in between!
Ironically, Will's favorite part of PT is when Ms. Jen seats herself on a dolly (like the furniture moving kind), leans him against her, moves his feet, and they go walking together. From my perspective, this seemed like the hardest work for him... but my perspective doesn't seem to mean boo! Will seems to take a lot of pride in walking. And even though it is pretty physically demanding on Ms. Jen, Will does so well with walking that she does it for as long as Will will tolerate. It was exciting and tear-inducing for me to see! Again, if you get the blog update via email, check the actual weblog to view the video!
So there you go... a typically long-winded view into a small portion of our lives as parents of two very special little boys who continue to work exceptionally hard to overcome their challenges!
Thursday, September 9, 2010
Tuesday, September 7, 2010
We went to Marla Dorrel Park in Cary on Monday to enjoy the great end of summer weather. First stop was the large serpent in the ground. For Will, this is the only stop that matters. Daddy runs him around and around, over the hills, around little kids just to hear Will's squeals and laughter. Below is a video of Monday's best run (as always, if you get the blog update via email, its best to check out the video by visiting the actual blog at www.ncslaviks.blogspot.com).
I assure you, no children were injured in the creation of this video!
Monday, September 6, 2010
Last weekend, we stopped in at Eno River State Park, about 25 minutes from our house. By the map online, it looked as though they had easy trails very close to a parking lot - perfect for us and the jogging stroller. We got started early to beat the heat.
But unfortunately, like so many other parks, you have to hike on a difficult trail to get to the easy trail! Why do they do that? It makes no sense. Anyway, we got about 0.01 miles into our hike before Nate and Will (in his backpack) took the jogging stroller back to the van. Luke (on foot), Otis, Matt (in the Baby Bjorn) and I opted to continue on to find the bridge over the Eno River and wait for Nate and Will to return.
Luke hiked that difficult trail like a champ, even mastered the stairs down to the river with minimal assistance. He was excited when he saw the bridge over the river. I, on the other hand, was petrified instantaneously. It was a suspended cable bridge, about 20 feet over the water. I am not afraid of heights. I like adventure and even a little danger... but not when I have two kids and a wimpy dog in tow on a bridge that moves!!
We climbed the stairs to the bridge: Otis in front with his leash in my left hand, me and Matt (who was wildly swinging his head all over the place to see what was going on), and Luke bringing up the rear, holding onto my right hand and doing his best to look straight down at the river beneath us. Everything seemed to be going fine, so we continued on to the bridge. By the time I realized this was a bad idea, we were already on our way to the other side.
With the first step on that bridge, Otis got freaked out. For a dog as regal as he wants to be, he looked downright cowardly as he got down onto his belly to cross the bridge. Luke's progress slowed as we got further across the bridge and he realized how much fun it was to bounce with each step and make the bridge move up and down, and side to side! Though it wasn't a terribly long bridge, it seemed like an eternity until we crossed safely to the other side. On the walk back, Nate took Otis. Phew!
After Nate and Will caught up with us, we walked about a mile on the smoothest, easiest trail you've ever seen (the jogging stroller would have been perfect)! Luke did wonderfully on the long walk, and didn't seem tired until after we had decided to head back to the van. Will did well with the longer trek in the backpack, and Matt actually fell asleep in the front pack for most of our adventure.
On the way back to the van, we sat by the river for a while and let Otis play in the water. Luke enjoyed throwing rocks into the river, and Matt enjoyed his time out of the pack. Will just wanted to get moving again... he loves being in the backpack and walking around. He hates to stop moving and is very clearly (and audibly) dissatisfied when Nate rests.