Sunday, January 27, 2013

That feeling of helplessness

If you've followed the blog for a while, you're well aware of the ups and downs we have had with Will's health.  Between sinus surgeries, in-patient stays, and seizures, we certainly are no stranger to medical drama. 

But for the past month or so, we've been dealing with a new foe.  Something so common yet so overwhelming and painful, that we're sort of at a loss for how to help Will.

Yes, I'm talking about gas.

Embarrassing, yes.  Necessary, yes.  Painful, most definitely yes.

Though we have changed nothing with Will's diet, medications, fiber intake, or exercise regime, several times a week, Will goes from being a happy, giggly kid to crying, and clearly being in pain.  Big tears roll down his cheeks.  And sitting in his wheelchair, there's really nothing that he can do to help himself.

So we've taken to laying him down on the floor and massaging his belly.  He usually cries through this too, until you hit the right spot.  Honestly, his intestines sound like Snap Crackle and Pop when you're pushing on them.  Ouch. 

After a while, he's generally back in a good mood, the painful gas having passed.  Usually this is just once a day, but if you can't get the gas out, he could be in pain and crying for a good hour.  It is heart wrenching, but we haven't been able to figure out what else we can do for him.

Of course there are more medications that we can put him on - but he's on so many already.  He usually eats a fair share of yogurt and applesauce each day.  He gets up to walk and stays in his stander for several hours per day.  We also lay him on the floor for an hour a day to kick around and play. 

What else is there?  Embarrassingly, yes... I am asking... what else can be done to pass the gas? 

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